International day of Hemophilia being observed today
ISLAMABAD (92 News) – International day of Hemophilia is being observed on Tuesday (today) to create awareness about hemophilia disease and other inherited disorders.
This year the theme of the day is “Sharing Knowledge Makes us Stronger”.
The Day was started by the World Federation of Hemophilia in 1989.
Haemophilia is the hereditary bleeding disorder caused by the deficiency of the clotting factor VIII (Haemophilia A) or IX (Haemophilia B).
“In developed countries due to timely treatment (regular factor replacement therapy and optimum physiotherapy supported by good counseling), those with hemophilia lead a near normal life. But 70 percent of our children become handicapped by the time they are 17 years old in our country.
Haemophilia disorder affects approximately 400,000 people worldwide, many of whom are not fully aware of their condition or are not getting the treatment they need.
Because a relatively small percentage of the world’s population suffers from haemophilia, many people are not aware just how serious this condition is and how much more difficult and dangerous it makes the lives of those who have it. Haemophilia is caused when blood can’t clot properly and as a result, excessive bleeding (external and internal) occurs after any injury or damage.
Symptoms include many large or deep bruises, joint pain and swelling, unexplained bleeding and blood in the person’s urine or stool.